Resources for Individuals Living with Chronic Illness
There are many different types of chronic illnesses people are suffering from. For people who have one or more chronic illnesses it often helps to connect with others who are suffering from the same or similar illness. One helpful way of doing this is via blogs and websites. I hope the list below will be helpful towards that end - though the list is not by any means exhaustive!
Spoon Theory is a way of looking at fatige and how to manage it. This is the original blog post about it: https://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
A Chronic Voice is a blog on what it is like to live with and work towards happiness when you have a chronic illness: https://www.achronicvoice.com/
The Mighty is an excellent resource on a variety of topics related to chronic illness: https://themighty.com/
Pain Resource has the latest resources on how to cope with chronic pain: https://painresource.com/
Reachout is a support network for patients and caregivers fighting chronic conditions: https://reachout.life/blog/
Below are blogs, websites, and videos categorized by more specific chronic illness type.*
Asthma
- http://breathinstephen.com/
- https://community.aafa.org/blog
- http://www.allergyasthmanetwork.org/news/
- https://asthmaallergieschildren.com/
- http://allergynotes.blogspot.com/
Crohn’s Disease
- https://calebscookingcompany.com/a-child-with-sjogrens-syndrome/
- http://www.inflamed-and-untamed.com/
Dysautonomia
Fibromyalgia
- https://brainlessblogger.net/
- https://www.chronicmom.com/
- https://www.healthrising.org/
- https://februarystars.co.uk/
- https://www.fibrofix.com/blogs/news
Lyme Disease
- https://www.chronicmom.com/
- https://februarystars.co.uk/
- http://www.tiredoflyme.com/
- https://www.lymedisease.org/lyme-basics/co-infections/about-co-infections/
- http://whatislyme.com/support-for-caregivers/
- http://www.ilads.org/lyme/about-lyme.php
Lupus
Migraines
- https://brainlessblogger.net/
- https://migraine.com/patient-advocates/janet-geddis
- http://www.thedailyheadache.com/
Parkinson’s Disease
Polycystic ovary syndrome (PCOS)
- pcosdiva.com/category/blog
- pcosdietsupport.com
- pcosnutrition.com
- pcosdietchart.com
- larabriden.com/category/pcos
- pcos.com/blog
- hellopcos.com
Postural Orthostatic Tachycardia Syndrome (POTS)
- http://www.dysautonomiainternational.org/page.php?ID=30
- https://myheart.net/pots-syndrome/
- https://www.youtube.com/watch?v=NsU4K-jCUMw
Sjögren’s Syndrome
*Note: Some blogs are repeated because the person writing it has more than one chronic illness. This list is for informational purposes only - and should not be used as substitutes for medical treatment. This is not an exhaustive list and I plan to keep adding to it.
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